“All of the people coming to the house and bringing us food and clothes is overwhelming” Kena told me tonight as we ran to CVS to grab some prescriptions for Bethany.
“Is that a good overwhelmed or a bad overwhelmed?”i questioned, digging a little to see if she grasped the power of the word.
We chatted about the reason why, her smile explained what she meant by her word choice and I thought I would pass along the fact that my 9 (soon to be 10) year old has summed up my feelings about the last week of life.
Overwhelmed is used in this house to typically describe a week full of meetings after school, IEP’s and no time to rest. This is not how we are using the word. This probably isn’t even the right word to use.
I guess what I am trying to convey is this….I can’t figure out how to express the amount of gratitude and shock at the amount of help and support we are receiving.
Another generous contribution from family on gofundme
BAGS full of clothes for the girls for school
A cash gift collected by our secret angels at school last week
2 Meals plus 2 soups for our family
Shelley taking Bethany to IV fluids and staying with her all afternoon
Another surprise gift from a coworker at school
THAT WAS IN 1 DAY
Yesterday was full of the same sort of generosity and love.
The day before that was the same thing. I had to pull of the side of the road when I received an email about a gift my lifelong (27 years) friend made to our family.
How can I thank you all> How can I thank you for allowing me to solely focus on helping my wife walk to the bathroom or make high protein smoothies? How can I thank you for being the manifestation of God providing all we need to survive? Instead of worrying about money and bills tonight, I was able to go out and kick soccer balls around with all 3 of my girls.
I am dumbfounded. I am speechless. I couldn’t even tell Bethany all that happened today because I didn’t want to have her become emotional after her rough day. Her hear rate was elevated today at the check up. She is on pain meds for the bone pain. She spent most of the day in tears because sitting still hurts and moving is worse.
We found out the cause of the bone pain today:
Neulasta is an effective medication to help shorten, but not prevent, post-chemotherapy neutropenia (low white blood cell count). Unfortunately, one common side effect is severe bone pain. It’s a growth factor, which means it works by revving up the bone marrow to produce more white blood cells. Since this is the cause of the pain, according to most experts, the intensity of the pain doesn’t change based on how many days after chemotherapy it’s given.
I apologize to all of you whom I have not said thank you or my reaction was less then what it should have been. It is truly amazing to me that so many people from school have done so much. With all that is going on at school, at church, and in the world we still have people asking non-stop how Bethany is doing. I will be as honest as possible when you ask. Don’t feel bad if I say she is not doing well. You took the time to ask and that is what I will pass along. I know you would help her if you could. Give me your smiles, hug the kids, and keep praying. She has made it through 2 rounds of the shot. This truly is the worst part of the treatment that I have seen.
I watch my happy and relatively healthy and energetic wife (Saturday was a great day at her parents) morph into just a shadow of where she was 48 hours ago. She moves at a speed of someone 40-50 years older. Kena asked me tonight “Why does it hurt mommy when I touch her?”.
Again, I can’t tell you enough how appreciative I am. God placed us here 2 years ago at HMMS for a reason. We thought it was to share Jesus with a 1000 kids a year. We had no idea how much Jesus you all would be showing us. Please don’t be shy with your instant messages Michigan people, sometimes your chats from a coffee shop are just enough to keep me going. If you are on the road and have time to kill, make that phone call. It means the world to hear from you. Tell me how your son recognized me on TV and called me Rocky. It is perfect.
And to my little brother, as your baby arrival date is upon us, please know we can’t wait to have this new bundle come into the world. We are praying for you, Grace, and Rosie. Way to keep increasing the hispanic population!
Everyday Bethany is going to get stronger. She misses being out and about with you and joking around. She knows the love that you are sending is real and that brings her to tears daily.
When you wake up in the morning and glance through this, please know that our hearts are happy and our God is good. We are so very thankful for having access to amazing medicine that is helping beat this cancer. Pray that Bethany drinks enough and that the pain would be manageable. Thank God for all the little ways he uses you. #showyourGlory Lord in a way that no one can explain but all can see.